Posts Tagged With: echocardiograms

Day 3671: Knowledge

Today’s Daily Bitch Calendar reminds me of sayings about knowledge like “a little knowledge is a dangerous thing” and “ignorance is bliss.”

I do know what I’m talking about when it comes to living your whole life with a rare heart condition, and it hasn’t always been easy. Yesterday, when I went for an echocardiogram, I was uneasy with the knowledge that the September echo I had in Georgia (when I had a T.I.A. or a “mini-stroke) had indicated there was “severe regurgitation” from my mechanical valve. My long-time cardiologist, Dr. Deeb Salem (who has lots of knowledge), told me that might mean the valve needed to be replaced or that a clot, since dissolved, might have caused temporary regurgitation.

Yesterday I made sure the echocardiogram sonographer had the knowledge about that earlier echo. Based on my experience in medical systems, I had the knowledge that she couldn’t really tell me the results yesterday. I knew I wouldn’t receive the official knowledge of whether or not I needed a new valve and another open heart surgery until later, after somebody with more knowledge had interpreted and documented the results. However, I really wanted reassuring knowledge yesterday after holding this scary knowledge for a while, so while watching and listening to her perform the echo and not having the knowledge to interpret the results as they were happening, I carefully said this: “What would it look like if there were severe regurgitation around a mechanical valve?” and I got the knowledge I wanted when she replied, “Not like what we’re seeing here.”

That knowledge made me very, very happy.

What knowledge is there in my other images for today?

I’m definitely going to celebrate today (with popcorn) my latest good news and the knowledge that I’ve really beaten the odds of life expectancy for my heart condition. When I see Dr. Salem next month, I’m going to ask him what it was like to be my doctor, starting when I was 27, having knowledge like this (which I just found when I googled my heart condition):

Dr. Salem, in all our years of working together, never conveyed that knowledge to me and here I am, about to turn 70! Also, I have the knowledge that some people with CCTGA have made it into their 90s and why shouldn’t I be one of those?

Here’s what I find when I look for “knowledge” on YouTube.

Thanks to all who help me share knowledge through these daily posts, including YOU!

Categories: heart condition, personal growth, photojournalism | Tags: , , , , , , , , , | 12 Comments

Day 470: 4/15/14

Today is April 15, 2014, abbreviated in the United States as 4/15/14.

Points I’d like to make about 4/15/14:

  • It’s tax day.  Tax day can make me (and — apparently — many, many, many other people) feel nervous, anxious, pressured, worried, concerned, and otherwise stressed.
  • It’s the one-year anniversary date of the Boston Marathon bombings (see here, here, here, here, here, here, and here for some posts related to that traumatizing event).
  • It’s a numeric palindrome (the same when read forward and backwards), in the midst of nine other such dates (starting with 4/10/14 and ending with 4/19/14).
  • It’s the day I can tell my readers this: the cultures they took in the Emergency Room on Saturday show no evidence of endocarditis, which is very good news.

What else do I want to tell you in this post?

Let’s go to the iPhone for recent photos, shall we?

I was just about to show you a photo from yesterday, when somebody walked in:

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That’s Theresa. She was here to take some of my blood.  I’ve met Theresa before: in the middle of the night, last night.

Some Theresa quotes from this morning:

  • “I’ve got to show you how to fight back,” when noticing a large bruise from a previous needle stick on my arm.
  • “This may sound mean, but I don’t care what people say to me,” when I said it might be nicer if she had a job where people were glad to see her.
  • “I don’t take things personally,” explaining how she dealt with people getting angry at her, calling her names, or exhibiting other behaviors she considered understandable in “people who are sick.”
  • “You’ll have to let me know if I make it to America’s Top Model,”  as she was leaving, in reference to my putting her photo in this blog today. As she was on her way out, Theresa removed her mask, so I could see her America’s Top Model smile.

So where was I, before interrupted by Theresa?  Duh!  Posting recent photos from my iPhone:

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That was yesterday’s shower. As usual, because the shower was new, it took me a moment to figure it out.

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That was a meal from yesterday. A little better than the one appearing in yesterday’s post, don’t you agree?

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That’s Johny, taking an echocardiogram in my room last night.  Some things I want to point out about that:

  • We both agreed it was unusual for somebody to have an echocardiogram taken in their room.
  • Johny told me, during this test, that my blood cultures showed no evidence of endocarditis.
  • Johny listened, really well, to stories I told him about previous echocardiograms I’ve had, starting in the early 1980’s, where a team of people spent all night trying to figure out my heart, one of them telling me, “We’re looking for your aorta. We know you have one, but we can’t find it.”
  • Johny explained the unusual spelling of his name like so: “I lost one ‘n’ on the way” between Jordan and the U.S.

At one point during the echocardiogram, Johny said, “You look really familiar.” I was about to tell him I hear that a lot, when Johny asked, “Didn’t  Dr. Estes bring you into a meeting the other day?”

Regular readers of this blog might remember this photo from Day 452: Random Shots, of said meeting:

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I then assumed Johny had already shown up in this blog, without a mask.

Nope.

It turns out Johny is the one person I missed when I took that previous shot. He pointed out  where he was sitting in the meeting: to the left, outside the frame.

I’m glad Johny reappeared in my life, so he could appear in my blog (where he definitely belongs).

Thanks to Theresa, to Johny, to others I’ve seen lately whom I know are kind (even though I can’t see their facial expressions), to the people of Boston, and to you — of course! — for visiting me in the hospital today.

Categories: inspiration, Nostalgia, personal growth, photojournalism | Tags: , , , , | 39 Comments

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