Posts Tagged With: Dr. Deeb Salem

Day 752: Too much?

Here’s a question I heard in a therapy group at work, yesterday morning:

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This question was asked and answered, in many different ways, by people feeling

  • vulnerable,
  • self-critical, and
  • overwhelmed.

Was that

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For me,  it was neither too much nor too little. I was honored to witness all of them, as they spoke, wrote, and shared about “too much.”

Often, in group therapy and elsewhere, people wonder: “Am I

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They ask, in many different ways: “Are my feelings, thoughts, needs, wants, demands, desires, responsibilities, tears, fears, hopes, burdens, reactions, laughter, anger, worries,  disappointments, expectations

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What do you think?

Yesterday, after work, I met with my primary cardiologist, Dr. Deeb Salem, for two hours, for the second time in two months.

Was that

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Did we talk

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Whenever I talk to Dr. Salem, it seems like the right amount.

Did we decide

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Not really. In the course of that long conversation, Dr. Salem and I discussed many scenarios and possibilities, including

  • the possibility of my having heart surgery soon after I return from California, in less than two months,
  • the distinct possibility that will help me feel better and live longer,
  • the distinct possibility of that heart surgery — valve replacement — making my heart worse,
  • the distinct possibility that if we do nothing for too long, my heart will deteriorate to the point where that surgery will not fix things, and I will need to wait for a heart transplant,
  • doing and deciding nothing until we get the results of the kashmillion* tests I’ll be undergoing in the next couple of weeks, and
  • Dr. Salem starting a blog about me.

I don’t think Dr. Salem was serious about that last possibility. When he said, “I’m going to start a blog about YOU,” as he left the exam room yesterday, to page one of the kashmillion* cardiologists I’ve been seeing lately, that sounded more like a threat than a promise.

Isn’t Dr. Salem

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And I mean that with just the right amount of affection and respect.

In all that I dealt with yesterday, was there anything that seemed

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One thing that seemed too much to comprehend and bear: When I arrived for my appointment with Dr. Salem yesterday, he was on the phone making plans to attend and participate in the memorial service for Dr. Michael J. Davidson.

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I found those images here, left in loving memory of the cardiac surgeon who was shot and killed at a nearby Boston hospital, two days ago.

For you, is there anything in this post that is

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I hope you know that any thoughts, feelings, or questions you express in a comment will NOT be too much, for me.

As I try to comprehend all that is happening around me, what helps me are

  • music,
  • community, and
  • humor.

So, when I woke up this morning, I thought about an old skit from Saturday Night Live. Let’s see if I can find it, anywhere …

I guess that was too much for me to expect, that I could show you the “Nuclear Plant Retiree” skit with Ed Asner, from Season 10 of Saturday Night Live.

If I try to describe that skit to you, would that be

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In that SNL skit,  a nuclear power plant expert, played by Ed Asner, is retiring. At his goodbye party,  he says to his co-workers:

No matter what happens, you just need to remember one thing: You can never put too much water in the nuclear core.

Everybody nods and bids him farewell.

Some time after he’s gone, something goes horribly wrong at the reactor. As people are panicking, some people are convinced he meant “Don’t put any water in there!” and others think he meant, “Put as much water in as you can!”

The last shot in that skit: Ed Asner sitting on a tropical beach with a nuclear cloud in the background.

Isn’t language — and all the possibilities of human beings misunderstanding each other —

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What music would be — not too much, not too little — just enough for this post?

As it is, this is the music I was listening to yesterday, as I was dealing with all there was:

If there’s too little of Pat Metheny playing “As It Is” in this post for you, you can find it here, on YouTube.

Would some other photos I took yesterday be

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My boyfriend Michael thinks it’s too much when people leave up Christmas lights this late in January. Since I enjoy color and light when it’s cold and dark, I think it’s just right.

Too much thanks to Dr. Salem, to the late Dr. Michael  Davidson, to my bf Michael, to Saturday Night Live, to Pat Metheny,  and to everybody everywhere who has ever helped me and others deal with too much and too little (including you).


* Kashmillion is too much.

Categories: inspiration, personal growth | Tags: , , , , , , , | 39 Comments

Day 677: Pink

I woke up this Saturday morning — not completely in the pink — but knowing that “Pink” was my title for today’s post.

In case you don’t know what “In the Pink” means, here’s the definition:

in the pink

in very good health and spirits.
synonyms: in good health, very healthy, very well, hale and hearty.

I think that definition comes from Google, but I’m not sure.

I feel more in the pink when I include facts in my posts I’m certain about, and I’m sure the following images of “pink” are from a Google search:

pink

(This Pink image lives here)

MARILYN

(This pink and Marilyn-y image lives here, supposedly)

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(This pink and beard-y image lives here, for some reason)

When I look for images with Google, I am sometimes tickled pink, and I am also often having other feelings that do NOT have colors assigned to them. For example, I am now confused (insert any color, here, you think would fit) about:

  • how Google decides which images to show me  (like, for instance, most of the images that came up  for “pink,” just now, were of the singer Pink, or P!nk, which might be representative of the culture’s focus on celebrity),
  • why a man with a pink beard would appear on a web page that seems, to me, to be about Australia and cars,
  • how every time I use Google to search for images these days, it seems a little different and slightly more difficult (but that might just be me), and
  • where the pink ribbons are, which I expected to see early on, in this Google Image search.

Let’s see if I can find any pink ribbons, in those returns of my Google Image Search.

As I’m searching, for that expected pink ribbon, I’m finding many, many more images of P!nk, plus

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(this pink and Starbucks-y image lives here)

Jennifer Lopez and Keith Urban get ready for 'American Idol'

(this pink and Jennifer Lopez-y image lives here)

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(This image lives here on YouTube)

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(This image lives here)

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(This image lives here)

That last image is close to what I was expecting to find, but not exactly.

I’m now feeling a little pink or blue or green or red or white or whatever color we might assign to impatience, since I thought this part of my post would be very quick to write.

Okay, I’m going to dive back into that sea of pink images again, to see if I can find that pink ribbon.

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(this image lives here)

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(this image lives here)

I think this search might be endless, actually.  I know I could find the pink-ribbon image I’m looking for, by doing a Google Search on “pink ribbon,” but color me stubborn, as I try one more time (even though, at this point, it feels like looking for a needle in a pink haystack).

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(that image lives here, on YouTube) (and by the way, if you’re looking for a music video in my post today, click on that link, and you’ll find it)

Okay. I give up.  You’ll just have to imagine or search for a pink ribbon, on your own.

If you read this blog on a regular basis, you might notice I don’t often give up. However, today, all these pink digressions have distracted me from what I thought I was going to write about

Which was ….? (And what color might we assign to the state of distraction?)

In order to pick up the pink thread I started here this morning, here’s my first sentence, which I wrote about an hour ago:

I woke up this Saturday morning — not completely in the pink — but knowing that “Pink” was my title for today’s post.

Why am I not completely in the pink, this morning?

I’m not entirely sure, dear readers. I mean, there are a lot of things in my life I feel tickled pink about these days, including:

  • the growing success of my therapy groups at work,
  • how much help it is, for me, to write these daily blog posts,
  • how many friends I have — in the blog-o-sphere and in the life-o-sphere — including  (1) Louise Gallagher who confused Black Sabbath with Pink Sabbath in her comment about my post yesterday and (2) Mark, my co-worker, who has appeared here and here and also in this photo I haven’t posted yet:

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Mark pink-papers Ann.

That was the caption Mark and I came up with for that photo, which I took when I was making copies for my sold-out presentation about The Koplow Method of Group Therapy, two weekends ago.

But NOW I have to explain what “Pink Paper” means, in that caption.

Actually, a photo I took yesterday, in my office, might  help make this crystal (is that a color?) clear.

Arrrghh! I haven’t up-loaded my photos from yesterday yet, and now color me hungry.  I wonder if there’s any pink food around for me, to eat?

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Close enough. I also have some pink grapefruit juice, but I am not stopping to take a photo of that.

Where was I?

Oh, yes! Looking for that pink-paper photo, from yesterday. Here it is (mixed in with some other colors):

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We really need to come up with a color for confusion, because I’m assuming all my readers are that color, right now.

Let’s see if I can help with that, even just a little.  Here’s the definition of “pink paper” which is, apparently, a local, Massachusetts expression:

House Bill 4681, an Act to Improve Emergency Access to Mental Health Services (Section 12 Law) was passed by the legislature and signed into law by Governor Patrick. As of November 8, 2010, LICSWs in the Commonwealth of Massachusetts will be authorized to sign a Section 12(a), known as a “pink paper.” A pink paper is the mechanism by which a LICSW moves to hospitalize an individual believed to meet the criteria for civil commitment. A LICSW may order that a mentally ill individual be restrained and taken to a hospital in the belief that failure to hospitalize would create a likelihood of serious harm by reason of mental illness.
Examples of situations where a Section 12 might be appropriate include:
  • Suicidality
  • Homicidality
  • Markedly impaired judgment due to mental illness to such an extent that a person is unable to protect himself/herself.

— The National Association of Social Workers (Massachusetts chapter) web site

Thank goodness, I have had to “pink paper” very few people, in my years practicing as a Licensed Independent Clinical Social Worker in Massachusetts. And when I have, these were situations where I truly believed people would be much safer, because of my action.

I’m wondering, again, what colors might be in your face as you read this portion of my post. If you have thoughts or feelings about any of this, I hope you know you can comment, freely.

I’m also aware that I still haven’t told you why I’m not completely in the pink today.

Well, I had a phone conversation with my cardiologist, Dr. Salem, yesterday.

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Doesn’t Dr. Salem (who last appeared in this blog post) look pink and friendly in that photo?

These days, I am seeing Dr. Salem once every three months, so we can pay more attention to my very unusual heart (which might have some pink in it, but is probably mostly red, although, I can’t really say, not having seen my own heart, but believe me, some surgeons saw the color of it, up close and personal, when I was a little kid, when I had two heart surgeries, for pacemaker implants, which needed to be sewn directly onto the heart, back in the 1960’s).

Somewhere in that long and winding parentheses, above, lies a pink thread to why I am not completely in the pink today. In my phone conversation with Dr. Salem yesterday, we spoke about the  distinct-as-pink possibility of my needing heart surgery again, for a valve replacement.

How distinct-as-pink IS that possibility?

Honestly, I think Dr. Salem and I really have no idea, because of my oh-so-unusual heart. All we really know is that:

  • climbing stairs is increasingly difficult for me (which could mean lots of things and not necessarily that I’ll need heart surgery) and
  • every three months, we shall track the colors, size, and other important attributes of my heart.

I’ll end with some good news, I think …

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All my toes and my fingers are pink!

Thanks to all who made it through this pink and many-other-colored post, today.  I think you deserve … a ribbon!

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(pink ribbon, but not the kind of pink ribbon I was looking for before, found here)

Categories: inspiration, personal growth, photojournalism | Tags: , , , , , , , | 45 Comments

Day 626: The C word

My cardiologist called me the C word, at my check-up three months ago.

I  tried not to catastrophize about it.  But I was concerned,  ’cause criticism can stick. Conversely, I considered it comical, that my cardiologist could call me that!

I concocted a cunning counter-move.

My cardiologist, Dr. Deeb Salem, is considered a completely caring and competent doctor, by everybody who comes into contact with him. But ever since he called me the C word, and I’ve clinically consulted his female co-workers — I’ve called him out, concerning that circumstance.

Care to conjecture these women’s countenances when I confronted them with my cardiologist’s comment?

They were completely confused and confounded, of course.

Yesterday morning,  as I contemplated my up-coming cardiology appointment with Dr. Salem at 3 o’clock that day, I considered comprehensive conversations about

  1. my congenitally corrected transposition,
  2. my other cardiac conditions and concerns,
  3. Dr. Salem calling me the C word,
  4. et cetera.

Concurrently, I considered this:

I know the title for my next blog post!

… a cognition I see is completely c-less, in the current moment.

I started seeing C-words, consecutively, on my walk to work, including

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 camera,

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cop (and cars!)

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crosswalk,

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and more crosswalks and crossers.

I considered what music to include in today’s post, and concluded:

Of course!  I’ll include a composition by keyboardist Chick Corea!  He was born in Chelsea, Massachusetts, where my father grew up!

Here’s Chelsea’s Chick Corea’s composition, Sidewalk:

(YouTube video of “Sidewalk” found here.)

Anyway, as I continued on the sidewalk, I noticed more cars and commuters.

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You can’t completely see her, but that’s my co-worker Jan, across the crowded street. I wonder if that looked creepy to anyone — my taking that many consecutive shots of Jan.

Jan is definitely NOT the C word my cardiologist called me (although she may have used various c-words, out of my earshot, when she’s feeling cranky). I consider Jan to be other C-words: caring, compassionate, comical, and convivial.  I wonder if she considers herself those things?

Anyway, I called out to Jan and she crossed over, to see me.

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After conducting individual and group therapy at work, I left for my cardiology appointment.  On the way, I encountered more C-words:

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… before encountering my cardiologist.

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That’s Dr. Salem, in the corridor before my check-up, calling me a “pain in the ass” to his co-worker!!

I continued my cunning scheme of calling out Dr. Salem calling me the C word, as his medical assistant, Julie, cuffed me:

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Julie said, “He called you WHAT?!? That’s completely uncalled for!!” (or words to that effect).

Anyway, everybody yesterday seemed very pleased with how I’m doing, cardiac-wise. And Dr. Salem and I cracked up, several times, during my cardiology appointment.

After the appointment, I casually encountered my other cardiologist, Dr. Mark Estes, in another corridor. Continuing my consistent cracking on Dr. Salem, I said to Dr. Estes:

Dr. Salem called me a pain in the ass, today!  I’m going to put that in my blog!

When I saw Dr. Estes’s concerned countenance, I reconsidered.  Then we exchanged these comments:

Me: Okay, I may not write that. But I’m definitely including in my blog something else he called me, three months ago. He called me   … CHUBBY!!

Dr. Estes: That’s worse.

Before I conclude this “C word” post, I have to choose a category for it. How would you categorize it?  Also, are there C words I could have included here, to make it more complete?

Thanks to my cardiologists, to Chick Corea, to people from Chelsea, to c-words everywhere, and to you — of course! — for coming by, today.

Categories: Uncategorized | Tags: , , | 37 Comments

Day 616: Nostalgia

What does the word “nostalgia” mean to you?

Here’s what it means to various dictionaries (according to thefreedictionary.com):

1. A bittersweet longing for things, persons, or situations of the past.
2. The condition of being homesick; homesickness.

 

1. a yearning for the return of past circumstances, events, etc
2. the evocation of this emotion, as in a book, film, etc
3. longing for home or family; homesickness

 

1. a wistful or sentimental longing for places, things, acquaintances, or conditions belonging to the past.
2. a longing for home; homesickness.
3. something that elicits nostalgia.

 

Why am I writing about nostalgia today? Lots of reasons, including these:

  1. I am having a college reunion this month.
  2. My late father’s birthday is tomorrow.
  3. Fall reminds me of going back to school, and I’m not in school any more.
  4. Yesterday, I was talking to my son about somebody who went to school with me from 7th grade through my college years, who died two years ago.
  5. Yesterday, I started going through some old papers, which I recently  retrieved from their storage in a place I lived two homes ago. I found many letters, including some from people I’m still in contact with (in person, through Facebook, or through this blog).
  6. I found a kind and thoughtful letter from the person I was talking to my son about earlier in the day, even though I didn’t remember our communicating by mail.
  7. Last night, I dreamt about somebody else whose letter I read, when going through those old papers, whom I haven’t connected with in many years.

I found a lot of surprising and not-so-surprising things, when I went through old papers — which have not seen the light of day for about twenty-five years — including:

  • A copy of the abstract my cardiologists wrote about me, when I first started working with them in the early 80’s (which Dr. Mark Estes referred to in a previous blog post, here, when he said about me to a roomful of people, “My first meeting with her got me into this specialty.”)

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  •  A copy of the memo my office-mate sent, in the mid -1970’s, about the going-away party sending me off to the company where I met the father of my son.

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  • A drawing I made of my son’s father, in the 1980’s, which might surprise anybody who has seen other evidence of my drawing skills, such as here:

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I have many more papers to go through. Who knows what else will show up here?

Personally, I’d like some music to show up here, now. I’m choosing two versions of a tune I heard at the Steely Dan concert I attended with my son this weekend, even though the lyrics don’t fit.

(YouTube video found here)

(YouTube video found here)

After all, I AM going back to My Old School.

Thanks to friends and family members (here and gone); to schools and other learning opportunities (old and new); to all the  cardiologists I’ve worked with in my long life; and to you — of course! — for any past, current, or future nostalgia you may experience today.

Categories: inspiration, Nostalgia, personal growth, photojournalism | Tags: , , , , | 20 Comments

Day 545: Embracing the shadows

This past week, I’ve been dealing with some shadows.

Of course, we all deal with shadows, like these:

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If the sun — or another source of light — is shining, shadows are going to be part of the picture, somehow.

This past week, I’ve been dealing with lots of different shadows, including:

  • the shadows of envy,
  • the shadows of disappointment,
  • the shadows of annoyance/anger, and (most especially)
  • the shadows of fear.

These shadows have been within me and, I think, within others, too. However, I only know my own experience.

So, keeping the focus on what I DO know, I know it helps me to recognize and embrace the shadows that are there.

I could give you several examples of that, from this past week. For instance, as the week went on, I became more aware that I’m afraid to go to the dentist, this Wednesday.

I’m afraid to go to the dentist, this Wednesday, because

  • I am prone to a heart infection called endocarditis (and have gotten it several times before),
  • In order to prevent that, I have been receiving intravenous (also called “drip”) antibiotics, right before a dental appointment, for several years,
  • My team of doctors recommended that I switch, for this next cleaning, to oral antibiotics, because that would probably do as good a job and, in ways, would be better for me,
  • Nobody knows, for sure, why I get (or don’t get) endocarditis, and
  • While I trust my doctors very much, they are not psychics, and if somebody gets endocarditis … it’s going to be me.

Last week, as the dental appointment got closer, I found myself experiencing shadow-y reactions and feelings, in response to different people and situations. And I kept losing track of why that was.

When I was at work last week, I kept the door to my office closed, all the time. Since my usual style is to keep my door open when I’m not seeing patients, that felt weird. Unbalanced. Like I was hiding.

Each time I took a breath and looked more closely at my inner shadows, I was able recognize the biggest one: the fear of going to the dentist and, as a result, perhaps putting my life in danger.

That, my friends, felt very dark.

This all may sound overly dramatic. This may be an example of the very human cognitive distortion of catastrophizing.  But there were reasons I was having these thoughts (as there always are).

When shadows are all around, I know what helps. It helps me to

  1. shine a light on the problem and
  2. share it with other people.

So, on Friday, I wrote an email to my team of doctors, which included this:

Hi, fabulous team,

So, Dr. Kogelman and I, at our last meeting, decided to shift from 3 to 4 months between teeth cleanings and also from IV to oral antibiotics.

Now that the time is approaching for my teeth cleaning, at Dr. Del Castillo’s practice next week, I’m feeling a tad … anxious. Perhaps because of the two changes in the protocol. Perhaps because I still don’t completely understand why I’ve come down with endocarditis all the times I have before.

So this is just an anxiety-reduction email to my team, to get some reassurance.

As soon as I sent it, I immediately got an automated message that my chief cardiologist, Dr. Deeb Salem, was away from the hospital, and not returning for another week. Knowing Dr. Salem, I wasn’t surprised when I soon got this email, from him:

Ann
There is nothing wrong with being anxious–keeps all of us rightly alert
Deeb

I wrote back, to Dr. Salem:

It keeps you alert, even when you’re away from the hospital!

Are YOU anxious, at all, about this plan?

If the answer is no, no need to answer this email. I will see you soon (as a matter of fact, I’ll schedule something today).

Ann

 I didn’t hear back from Dr. Salem (which is a good sign). Also, I got too busy at work to follow through on my promise about scheduling a cardiology appointment with him.  We might call that procrastination, or avoidance, on my part. Or we might just say, “Hey!  Give me a friggin’ break!  I’ll make the appointment next week!”

Later, I got an email from Dr. Kogelman, who is my medical team’s endocarditis expert, which included this:

Ann If you would feel more comfortable only changing one thing at a time, I have no problem with continuing the pre-procedure IV antibiotics.  I was trying to switch to the PO just to make things a little easier for you.  I do think either the PO or the IV would work fine, but if you want to just switch the schedule for cleanings first, try that for say a year, and if all goes well, then switch to PO, that is totally reasonable. Just let me know so I can work with Kerri to set this up.

Kerri is my IV nurse, who has appeared before in this blog:

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When Dr. Kogelman and I agreed, a couple of months ago, about switching from IV antibiotics to oral ones, I said, “Here’s my one regret. I’m really going to miss Kerri.” Dr. Kogelman replied, “I’m sure you can figure out a way to still see her.”

When I got Dr. Kogelman’s email, I realized that the decision was up to me. I like being an adult, being treated like one, and making my own decisions, but …. there are shadows to all that, too.

What would you do, in this situation, if you were me? How would you assess the risks, balance the familiar with the new, embrace all the shadows,  and make a choice?

.

.

.

Time’s up!  I’ll tell you what I decided, by showing you what I sent back to Dr. Kogelman this morning:

Hi Dr. Kogelman,

Thanks for this great email.

This is what I’ve decided:

(1) If you can book me for an IV at 12 noon this Wednesday, July 2, let’s do that.  (My dental appointment is at 1:15). That would be my preference, at this point.

(2) If that is not possible, please call in an Rx for Avelox to my pharmacy.

All the best,

Ann

Here’s what I’m noticing about that: I expressed a preference, accepted both possibilities, and left some room for luck, too.

Thanks to shadow-makers everywhere, Dr. Salem, Dr. Kogelman, Kerri (who I may or may not see on Wednesday), everybody on my team, and to you — of course! — for the shadows and light you bring today.

Categories: inspiration, personal growth, photojournalism, quiz | Tags: , , , , , , , , , | 39 Comments

Day 402: News (good, bad, and indifferent)

Regular readers of this blog know this:  I had my yearly check-up with my cardiologist, Dr. Salem, plus an important test of my heart, scheduled for yesterday.

Regular inhabitants of the United States know this:  The weather has been very challenging this year, and a snowstorm might have posed some challenges, yesterday, for my making this VIP — Very Important ‘Pointment.

Regular readers of this blog know this, also: I have limited time in the morning to write my daily post, which can be a challenge when I have lots to say.

And I do have lots to say, today.

So … how to organize this post, to promote clarity and good communication?

I’ve already indicated some organization — in the title. I also like to tell stories chronologically.

Let’s see how this goes, shall we?

Yesterday morning, after I finished my post, I decided to drive to work.  This was a risk, but a calculated one. With a lot of snow on my car, in the air, and on the roads, I chose a post-rush-hour departure time, to reduce the danger.

As I ventured out, I spoke to myself, like so:

Geesh, Ann!  Why are you (and other people) so afraid about snow?  I know snow causes accidents, but it’s beautiful! It’s light and fluffy, too. While you may have read how removing snow can cause heart attacks, you’re smart and experienced enough to figure out a way to get out of here that’s safe!

And once I felt safe enough, as usual, my sense of play kicked in.  And when I looked at my car and pondered ways to clean it off, I thought:

When you were a kid, you weren’t afraid of snow.  You enjoyed playing in it, and so did everybody else. So why not play with it now?  Don’t worry about looking like an adult, or “doing it the right way” as you’re cleaning off your car!  Just have fun with it!

And by:

  1. evoking good memories of my childhood and snow,
  2. imagining the fun I could have in the present,
  3. being in touch with my adult competencies and wisdom, and
  4. thinking about how I could share the results, at some point, with other people (including you, dear readers) ….

…. the result was: magic.

I know, dear readers, that I need to get to “the point” of this post: my afternoon cardiology appointment. But please bear with me, as I show you some photos of my morning.

I didn’t think to take a “before” photo of my car before I had fun clearing it off, so I will show you a photo of my downstairs neighbor Karen’s car:

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… so you can get some idea of how much snow there was.  Here’s my car after (what felt like) a short amount of music-filled fun, playing with the snow:

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Yay!

Then, to get safely to work (and continue to have fun), I just needed to remember:

  • I DO know how to drive in the snow (I HAVE had lots of practice)
  • I have a fine little car, for that purpose: it’s a 5-speed manual, and
  • I’ve had lots of practice with that, too.

So, I figured, if I’m very careful, pay attention, get in touch with my driving skill, AND remember this:

You have all the time you need.

(in other words: “Don’t rush, Ann!”) … driving to work should be fine.

And it was.

Here are some photos I took on the way to work.  (I only took photos while I was waiting at lights I knew were very long, so I wouldn’t have to rush, in any way):

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As you can see, there was very little traffic. When I got to work, and somebody asked how my commute went, I said, “It was one of the easiest commutes I’ve ever had.”  And because she had driven in earlier, she looked very surprised.

Okay!  Time to write about my afternoon cardiology appointment.

I was scheduled for:

  1. My yearly echocardiogram, which shows much important information, regarding the function of my very unusual heart.
  2. A yearly check-up, with my cardiologist, Dr. Salem (whom I wrote about recently, here).

Good News

Because of the snow storm, very few patients were there, so I got lots of extra time with everybody.

Starting out, I got extra time with a very helpful echocardiography technologist, whom I hadn’t met before, but who was kind and informative. As a matter of fact, for the first time since 1980 (when I first found out about my very unusual heart), I think I may really understand how my heart works!

My new understanding, after all these years, does not reflect poorly on my cardiologist or on me. No, not at all, since the way my heart works is VERY counterintuitive. My heart has two big “mistakes” which cancel each other out (as a result, the blue blood goes to the lungs and the red blood goes to the body, just as it does with your heart). However,  different parts of my heart are doing things that they are … just not designed to do.

Now, I don’t mean that the different parts of my heart are doing something VERY different. That is, my ventricles — which do all the important major pumping (which is THE job of the heart)  — are still pumping blood to all the right places. My heart ventricles are not trying to do something totally out of their wheelhouse1 — like write this post or drive a car.

However (and this should probably be in the category of “Bad News”), the ventricle that is designed to do the tough work (pumping blood to the body) is doing the easy work (pumping to the lungs) AND the ventricle that is designed to do the easy work (pumping blood to the lungs) is doing the difficult work (pumping to the body).

And therein lies the danger — the possible bad news.  My ventricles may fail, prematurely, because they are doing what they are NOT designed to do.

But, we just don’t know.

More good news:

I also got lots of extra time with Dr. Salem AND (unexpectedly) with my other cardiologist, Dr. Mark Estes, whom I’ve written about previously, too — here (credited) and here (uncredited).

Now, why am I SO SPECIAL, that I have TWO cardiologists?  Well, I AM special.  Deal with it.2

Anyway, where was I?

Oh, yes.  Good news.

Actually, I don’t know how to place a lot of the news I heard yesterday into the buckets of Good and Bad.

I’ll just tell you the news, as I understand it, right now:

  • The two indicators of my heart function MIGHT BE showing a troubling trend.
  • For now, my heart is stable.
  • My cardiologists are not psychic, but they are definitely on top of all the possibilities — that I may or I may not need valve replacement surgery.3
  • Valve replacement surgery had never been discussed as a distinct possibility, before yesterday.
  • My doctors want to switch from seeing me once a year to …. once every three months.  That’s new, also.

As usual, I am trying to interpret “the clues” to figure out how safe I am.

And it’s very confusing, people!

But here’s some good news I’m sure about:

  • My doctors will do anything they can, to keep me alive as long as possible.  After yesterday’s appointment, I “got” that, in an entirely new way.
  • If I do need a valve replacement, they will be doing their best to grab the best window of opportunity, to ensure the best possible results.
  • I asked Dr. Salem, at the very end of our appointment, if he expected to be celebrating my 70th birthday with me. He had read the post I recently wrote, which explains that question. And he said ….

Yes.

So there it is, in one word: The good (enough) news I needed to hear.

Now, I need to wrap up this post.

I notice I haven’t included  a section for  “Bad News” or  for “Indifferent” in this post  (as I had originally planned).

I think the bad news, from my appointment yesterday, is scattered among the good news. And that’s just going to have to be good enough, for this post.

Also, I want to say this: the “bad news” is probably not as bad as I might fear. What is the bad news that I fear?

That I will die prematurely, and not get to see my child flourish in the world.

But that’s a fear that I probably share with a lot of other people, in one way or another, no matter what kind of heart they have.

And I have great people on my team.  Which is VERY good news.

So what else is missing from this post?  This part of my blog post title:

Indifferent.

Here’s what I want to say about “Indifferent” right now.

While I may sometimes assume indifference from my doctors, due to old indifference I experienced from doctors and nurses when I was a child in the hospital in the 1960’s, that is NOT the case, in the present.

As a matter of fact, my current treatment team is the OPPOSITE of indifferent.

Hmmmm. So what IS the opposite of indifferent?

Different?

Ooops!  Gotta run. There’s a lecture on Narrative Therapy today, one of my favorite ways of working with patient, clients, or whatever-you-want-to-call those amazing people I get to work with.

But you know what?  Among the many lessons I (re-)learned yesterday is this: I don’t have to rush.

In other words …

You have all the time you need.

Thanks to Dr. Salem, Dr. Estes,  Diane (who did my echocardiogram), people who are different and/or indifferent,  and to you — of course! — for visiting today.


1 To use an expression I’ve been hearing WAY too much of, lately. Why, oh why, are so many people in the media suddenly using the expression “In (or out) of somebody’s wheelhouse”?  What the hell 2 IS a wheelhouse, anyway?  Is it a house made of wheels?  A place to store wheels?  That phrase is totally counter-intuitive to me, people.  I get confused. (Although, I do know what that expression means.)

2 I’m a tad cranky, to tell you the truth, right now. Why?  Hunger (as usual) and, honestly, it’s tough to make sense of all the information I got yesterday. I guess I’ll grab some more food and take a breath.

3  The heart valves are switched on me, also, so one of them leaks quite a bit, presenting all sorts of potential dangers.

Categories: personal growth, photojournalism | Tags: , , , , , , , , , | 35 Comments

Day 400: Expected Numbers

First of all, dear readers, I want to acknowledge the number of my post today.

I made it to Day #400!   Yay!!

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When I started this blogging journey, my goal was to make it to Day #365, with no expectations of ever getting into the Four Hundreds.

Which reminds me of a story, ladies and gentlemen. The timing for this story is pretty darn good, since I told this story at my 60th birthday party, almost exactly a year ago.

The story is about ….

Me and My Cardiologist

My cardiologist’s name is Dr. Deeb Salem.  He works at Tufts Medical Center.  Here’s a photo of him:

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I could tell lots of stories about Dr. Salem, since I’ve been working with him since 1980, when I was 27 years old. I’ve already written about him here, on Day 62 (credited) and Day 275 (uncredited).

I just checked to see if there’s a Wikipedia page about Dr. Salem. I found that while Dr. Salem doesn’t have his own Wikipedia page (which surprises me), he shows up on a page titled How Doctors Think, which is a book by Dr. Jerome Groopman. I don’t want to go too deep into this digression, but I will quote from that page, as follows:

Salem’s challenge

Groopman spends a great deal of the book discussing the challenge posed to him by Dr. Deeb Salem, chairman of the Department of Internal Medicine at Tufts-New England Medical Center, during a presentation the author made at their hospital grand rounds. During the presentation, Groopman was discussing the importance of compassion and communication in providing medical care when Salem posed the following question:

“There are primary care physicians in every hospital who speak with great sensitivity and concern, and their longtime patients love them, but clinically they are incompetent–how is a patient to know this?”

This is what I find ironic about THAT:  a lot of Dr. Salem’s patients love him, 3 including me.  But I understand why Dr. Salem may have asked that particular question.  He is not only lovable, he is EXTREMELY competent. Believe me, I know.

Anyway, back to the story I told at my 60th birthday party.

I will set the scene, with the cast of characters. I had invited Dr. Salem to my 60th birthday party and I planned to tell this story, at some point during the festivities.  Soon after he had arrived with his wife, I found the two of them chatting with some other Very Important People in my life. I joined the conversation and told my story, as follows:

When I was 44 years old, and about three months pregnant with my son, my then-husband was experiencing some medical problems. He wanted to spend time, on a Saturday, at the Boston University Medical Library, researching his symptoms. Since I hadn’t brought anything else to read there, I became bored, so I decided to look up the latest research about my very rare medical condition, Congenitally Corrected Transposition of the Great Vessels. 4

And what I found, that day, totally freaked me out.

I found published medical articles that said:

  1. Women with my condition should NOT get pregnant.
  2. Most people with my condition were not expected to live past their 40’s.

You can probably imagine how I felt, reading those, that day.

Very soon after that, I called Dr. Salem and told him what I had found. And I know I was having many feelings, during that phone conversation, including fear. And anger, too. I remember crying and perhaps raising my voice, a little 5 on the phone.  The gist of what I was saying was:

What am I supposed to think about all this? And why didn’t you tell me these things before?  I’m 44 years old and three months pregnant!  Arrrghhhh!!!! 6

And this is how Dr. Salem responded, on that day on the phone with me, in 1997.  He said, very calmly,

Ann, you have an incredibly rare condition.  Every article published about your condition uses a very small sample size. So the results are suspect.

And Dr. Salem told me some specifics about the articles I had read.  While these details were somewhat reassuring, I cut to the chase:

Let me ask you this, okay?  Am I going to make it to age 50?

Dr. Salem immediately said,

Yes, Ann.  I look forward to celebrating your 50th birthday with you.

I immediately shot back,

What about my 60th birthday?  Will you be celebrating that with me, too?

And because I am very observant of subtle reactions in people, I noticed that Dr. Salem paused and took a breath, before responding, more slowly this time:

Yes, Ann. I expect to be celebrating your 60th birthday with you.

And, my punchline, as I was telling this story to Dr. Salem, his wife, and other VIP’s at my 60th birthday party was …

And here we are!!!

But, as usual, Dr. Salem had an even better punchline.  He laughed and said, “I remember that conversation.  I was wondering if I was still going to be around for that.”

And Dr Salem, his wife, and other VIPS in my life celebrated, that day, that we were all very much alive.

So why am I finally7 telling you this story today, dear readers?

Because, tomorrow I’ll be seeing Dr. Deeb Salem for my annual cardiology visit. And it’s the first time I’m seeing him since I left the hospital, a few months ago, after developing atrial fibrillation and being prescribed anti-coagulant medication, probably for the rest of my life.

And, honestly, I have some fears about this appointment.  I’m going to be asking him some difficult questions. And, as always (because I’ll be getting some tests that day, too), I might be hearing some difficult answers.

However, I may very well be catastrophizing, right now:  looking into the future and imagining the worst.

I’ve got an idea!  Maybe I’ll ask him about my 70th birthday party!

Thanks to Dr. Salem (obviously) and to you (of course!!) for reading today.


1  This photo has shown up several times before, including this post and this post.  And in case anybody is wondering…. NO! I have not gotten any further in developing my brilliant product idea of Neat Confetti.

2  I found this photo here.

3  Believe me, I know.  I’ve seen it, over the years, in many circumstances, including a dinner honoring him about five years ago, which I attended (and where many patients talked about their positive experiences of him).

4  See here, for my most detailed blog post about my heart condition.

5  I raised my voice only a little because other people were around me AND I have a little trouble expressing anger (as I wrote about, yesterday). Although, come to think of it, I feel pretty safe expressing all my feelings to Dr. Salem.

6   Or words to that effect.

7   I could have sworn I already told this story, in a previous blog post. But …. NO.

(I’ve forgiven WordPress.  I was angry at it earlier for throwing in unexpected numbers for the footnotes, which I’ve now fixed. C’est la vie, right?)

I’m mad at WordPress again. Unexpectedly, it changed the date of this post from the correct one, February 4, to February 2. While it might be fun to time travel two days back to my birthday, this screws up the order of my posts. The authorities have been alerted. (And they — and other bloggers — helped me fix it, on 2/5.  Yay!)

Categories: inspiration, personal growth | Tags: , , , , , , , , , | 53 Comments

Day 62: Self Disclosure

Self disclosure — what I reveal about myself — is something I think about a lot, in my work as a group and individual psychotherapist and, now, here in the blogosphere.

Some people who comment to me about this blog have said, “You are so brave, revealing so much of yourself!” I don’t feel brave about what I am writing here. As I’ve said in several other posts, I choose what to write here based on What Will Help Me To Write, in the moment. One might call that selfishness, not bravery.

At the same time,  I recognize that it does take courage for people to expose themselves — because exposure increases vulnerability.

And I do feel fear, at times, after I launch a post into the Blogosphere with the “Publish” button. Sometimes, before clicking that Blue Square of Publishing, I hesitate. And after the launch, several fearful questions can arise — ones that I witness people experiencing in group therapy — such as, Did I reveal too much? Have I put myself in some danger now? Will I lose some people? Will I get hurt? Will I hurt others?

In my work, I am not a “blank slate” kind of therapist. My style is to self disclose, in a thoughtful way. I do let people know what I’m thinking, authentically, usually focusing on their issues — on their journey. When I self-disclose as a therapist, I often ask myself this question first, “Who is this for?” and I let the answer, “For the other person” help guide my choices in self-disclosure.

But the truth is that the answer to that question, “Who is this for?” isn’t a simple one, because any self-disclosure I do is also for … me.

I also guide and limit my self-disclosures as a therapist in another way. I don’t tell people personal details about myself and my life outside of my work. I reveal “existential” information about myself — that is, how I experience and deal with primal, human issues, like dealing with loss, self-doubt, fear, the need to connect with others, and so on.

And I have heard from many clients, patients, and group members — people I’ve worked with in different ways — that the way I self-disclose has been very helpful for them.

But my self-disclosure as a therapist is something I have some fears about, because there are no clear rules. Or — especially in the Earlier Days of Psychotherapy — the Rules of Self-Disclosure can be very rigid, like “Thou Shalt Reveal NOTHING!” And psychotherapy is not a science, folks, as much as some practitioners may want to think that it is, or believe that it’s getting closer to a science. So, to a certain extent, those of us in the Therapy Biz are all making this up as we go along. (Mind-Reading Moment: I’m imagining other therapists reading this paragraph and getting angry.) (Catastrophizing Moment: I’m imagining losing credibility in the Therapy Biz because of what I’m writing here.)

Phew! As usual, catching myself Mind Reading, Catastrophizing, or engaging in any other cognitive distortion — like I just did in that last paragraph —  helps me to let go of fear. And I feel better!

So where was I?

Here’s some self disclosure.  When I ask myself  “So where was I?” I am really asking, what did I want to communicate here?  That is, What was my wish, my intent for this communication?  Because that guides what I choose to write, even if I “veer off” along the way with extraneous thoughts.

Here’s some more self disclosure. I am a lot more forgiving of other people’s imperfections or humanity than I am of my own.  People I witness often apologize to me about their asides, their digressions — how they get “waylaid” when they are telling a story, by “extraneous” thoughts.  When they apologize, I often say, completely authentically — “That’s the way people tell stories.”

But yet, I have trouble forgiving that humanity — that we are not perfect, linear story tellers — in myself.

Which reminds me of  one of the Antidotes (to Cognitive Distortions) I’ve been collecting:

  • The “Double-Standard” Method. Instead of judging yourself harshly, talk to yourself as compassionately as you might to a friend with a similar problem. Also, ask yourself, “How would I react if somebody else did this?”

So, to go back to that “Where was I?” question — What was it I wanted to reveal here today?  What did I think would help me to write?  Which also includes this:  What did I feel a yearning to communicate to you, my reader, today?

Here are  some things I wanted to self-disclose today:

I wanted to let you know about other important members of My Team (people who help me survive in this world by giving me personal or practical support). The team members I wanted to tell you about today include Bob and Laurie, who work at the Pacemaker Clinic, where I go for periodic check-ups.

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I wanted to let you know that I’ve felt connected to Bob for several years, and that I appreciate, so much, how he treats me with respect.

I  also wanted to let you know that, until Thursday (when I took this picture),  I feared working with Laurie, because I did not feel connected with her. Because her style is so different from mine, I projected judgment onto her, and mind-read that she was thinking negative things about me, like “This woman is  a pain-in-the-neck patient.”  “She doesn’t know what she’s talking about.”

I wanted to let you know something else about Laurie and my encounter with her on Thursday: I expected to work with another person at the clinic that day, named Melanie, whom I’ve known, trusted, and pretty-much-loved for over 20 years, and when Laurie came to get me for my test,  I knew that I was showing my disappointment.  As Laurie was putting the electrodes on me for my pacemaker test (which, honestly, has scared me for each of the hundreds of times I’ve had those tests before), I felt so lousy — with disappointment, anger, fear, and disconnection —  that I decided to do something new and be authentic with her. So I said, ” Laurie.  I don’t feel a connection to you. I wanted to let you know that.  I also wanted to say something, that feels important, to myself and to you, right now.  It used to be important to me, when I was a kid, to feel connected to everybody who treated me medically.  But I’m not a kid any more. I don’t need that connection with everybody who treats me.”

I don’t know if Laurie understood everything I was saying to her, but she was authentic with me, too. She told me, in her own words, “I know you don’t feel connected to me. I know you feel much more connected to the other people here.  That’s why I offered you the chance to wait for Bob to be available. Not everybody feels connected to everybody else.  Some people feel connected to me, others don’t.”

And that exchange with Laurie was one of the best things that happened to me that day.

It was also great to see Bob after my test (which showed that everything was working great, by the way) and to blab with him a mile-a-minute about birthdays, vacations, What’s Going On With My Pacemaker, etc. etc.

And when I asked if I could take a picture of both Laurie and Bob and put them in my blog, they both seemed pleased to oblige.

I also wanted to tell you that after I took this picture of Laurie and Bob, I met with Dr. Mark Estes, who is one of  two Crack Cardiologists on my team.

The Lead Cardiologist on My Team is Dr. Deeb Salem, whom I’ve been working with for over 30 years and who I pretty-much-adore, because he, from the moment I met him — when I was interviewing cardiologists after I decided to leave Children’s Hospital, where I had been treated from birth —  showed me how smart he was and also treated me with respect. He let me know that he would treat me as a partner and an equal if we worked together.

And — like they did in my first encounter with my mechanic, Mark —  all my Trust Indicators came up green when I first met Dr Salem.  And Dr. Salem has been incredible — the most appreciated Medical Team Member I could ever imagine — ever since.

But I wanted to tell you, today, about Dr. Estes.  Dr. Estes — because his style is different from mine — is also somebody with whom I’ve Mind Read in the past. That is, I’ve projected judgment onto him, specifically fearing that he might experience me as a pain-in-the-neck patient.  And this is totally unfair to Dr. Estes, which I’ve known before, but which hit me with a burst of new understanding on Thursday, when he sat down and talked to me for about fifteen minutes after my pacemaker test with Laurie.

Dr. Estes is a very smart, very well-respected pacemaker specialist. He is also kind, thoughtful, and — above all — a very modest guy. As he self-disclosed to me on Thursday, “It’s my Quaker background.”  He did not want me to take a picture of him and feature him in a blog post because, as he said in his own words,  I don’t want to do anything that seems like self-promotion.

Dr. Estes also let me know, in new ways on Thursday — which I was able to take in because of the work I’ve been doing on self-acceptance — that he really appreciates me as a patient. He acknowledged that other doctors might find me a handful, because — as he said in his own words — I’m intelligent, I ask lots of questions, and I am complicated medically — but he said this to me, very clearly, on Thursday: I really enjoy working with you, Ann, exactly how you are.

And those encounters I had at The Pacemaker Clinic on Thursday felt so important to me, so liberating, so moving, that I walked away from that appointment, with tears in my eyes.

And I have tears in my eyes, now, dear reader.

Okay.  My work here is done today.

Thank you so much for witnessing, as I self-disclose along this always surprising, team-supported journey.

P.S.  I don’t think I will hesitate much before pressing “Publish” today.

P.P.S. Which is amazing!

Categories: personal growth | Tags: , , , , , , , , , , , , | 19 Comments

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