Posts Tagged With: childhood illness

Day 105: Everything makes sense on some level(s)

This seems like an important topic to me.

It really helps me to remember that everything makes sense on some level. (This seems to help other people, too.)

It’s something that I tend to forget, though.

It’s something that I keep re-learning, in new ways, as I grow.  (See this post, which people really seem to like, about re-learning things as we move through life.)

I want to start writing about this topic, in a new way, today.  I want to start telling the story differently.  (See this post, which people seem to like even more than the other one I just mentioned, about the importance of how we tell stories.)

I want to give myself room to write about this briefly — to start the conversation with you.  Because that’s another important lesson I’ve learned — it’s really valuable just to connect authentically, even for a few moments,  and start a conversation with somebody.

Really Brief Digression about the Presentation I Started Giving Last Week

At the end of the presentation I gave — called “The Power of Groups” (which is really about connecting effectively with patients, no matter where —  a medical resident put this beautifully. He said,  “What I learned today was that it’s a great start just to (1) validate a patient and (2) give them some next steps.”  (It made me so happy, that he (re-)learned that.)

End of Brief Digression

So, this is how I want to begin the conversation about this topic today.  I want to start listing things that freak me out — things that make me “too anxious,” and which can make me almost unbearably anxious when I’m under stress.

Today, I just want to name these things (thus reducing their power) and give a little bit of data about them, to start proving that they make sense on some level(s).

I am also going to divide the data into different types:  Reasons That I Share With Others (which help me feel connected to other people) and Reasons That Can Make Me Feel Different (and therefore alone).  This is something I notice all the time, in my work as a group therapist — people connect — and heal — when they realize they are not alone with feelings and experiences. At the same time, they can disconnect about things they feel alone about (and shame about).

Another thing I’ve been learning lately:  the things that make me feel alone and different might not be as isolating as I think.  So I’m going to address that in this list, too.

One More Digression (to stall and also — I hope — to be helpful)

Before I launch into this  list , which feels new, and therefore scary (see here for a fun post about that) (and yes, I am stalling — or “procrastinating” — by throwing in lots of links, because I’m anxious about writing this),  I just wanted to let you know that Naming Things and Gathering Data are #1 and #2 on  This List of Coping Strategies  — even if I don’t call them that on the list.

End of Last Digression

Okay!  Deep breath …..

Things That Freak Me Out “Too Much“

# 1 : Giving a presentation freaks me out.

Why this makes sense to most people:

The top two fears of people are public speaking and death.  (See this post for more about that, plus a quote from Jerry Seinfeld.)

Why this makes sense to (only) me:

Because, when I was in college, right before I graduated, the administration decided to give English Majors an Oral Exam (as a way to reduce grade inflation).  The board of professors who gave me that exam were very tough (I experienced them as shaming and humiliating).  I started out gamely, but things they said, (like “You are about to graduate from THIS SCHOOL and you don’t know THAT??”) made me so anxious, that I kept doing worse and worse.  I felt like I was freezing and my brain slowed down, and I remembered less and less. I left the room and burst into tears.  I knew I had screwed up.  When I told a friend how I had done, he said to me, “Oh, Ann. You always think you’ve screwed up.  I know one of the professors who was there. I’ll ask him.” And I remember my friend’s face when he said to me, “I spoke to him. You were right. You failed the exam.”  And I still graduated, with honors, but at  a (much) lower level.

Why that story of mine isn’t so different from lots of other stories:

Many people have had experiences of feeling humiliated while they were speaking in front of others.

#2:  When things don’t work the way I expect them to (especially technology), I freak out.

Why this makes sense to most people:

Lots of reasons: It’s frustrating when things don’t work the way they’re supposed to!  Most of us are trying to do too much with too little, and if things don’t work correctly, we feel like we don’t have time to spare to correct for that.   Some of us, who are older, feel like we can’t keep up with all the changes in technology (computers, cell phones, etc.). Even low-tech devices (like food processors, which freak me out) require a learning curve to use smoothly.

Why this makes sense to (only) me:

I am dependent upon a technological device — a cardiac pacemaker — to help me survive.  When man-made devices fail, that reminds me (on a subconscious level, usually) that my pacemaker can fail, too. (And I had several pacemakers that didn’t work so well , when both I and pacemaker technology were very young.)

Why this story of mine isn’t so different from lots of other stories:

Hmmm. I’m not sure about this one.  Maybe … lots of people feel REALLY dependent upon technology these days.

#3.  People not telling me the truth freaks me out.

Why this makes sense to most people:

Nobody likes being lied to. It can feel like a betrayal.

Why this makes sense to (only) me:

When  I was a kid in the hospital, and had gotten my first pacemaker, nobody prepared me for what it was going to look like in my body. (It was big and it stuck out under my skin, A LOT.) When I first saw it and asked what it was, a nurse — who was the only person there while I asked — lied to me about it.  She said it was just my hip, swollen from the surgery.  (By the way, this was the story that I didn’t feel ready to tell while I was writing this post.)

Why that story of mine isn’t so different from lots of other stories:

Lots of people have been lied to — when they were small, vulnerable, and powerless –  by those who were supposed to be taking care of them (and protecting them).

Oh.  I guess this is going to be a short list this morning.

It’s a beginning list, isn’t it?

And, you know what? I just told a story — that’s really important to me —  in a new way.  In a short way. In a contained way.  In a way to honor my difference and uniqueness, but also to connect with others.

And I feel better. I feel like I changed something here.

So that concludes our post for today, ladies and gentlemen.

I hope this post made sense (to you).  It made lots of sense to me.

Thank you, so much, for reading today.

Categories: personal growth | Tags: , , , , , , , , , , , , | 9 Comments

Day 103: We don’t have feelings until we’re ready for them

I said that to a woman, in a therapy session, a few weeks ago.

We don’t have feelings until we’re ready for them.

I believed it when I said it, too.

The woman told me she found this a useful phrase, since she’d been crying a lot lately.  I could see her letting go of the fear of her own feelings, in that moment.

I remember, many years ago, somebody else explaining  to me why she never cried, with this:

 One of my tears would flood the world.

I’ve heard people say similar things, like this:

I fear if I start crying,  I will never stop.

I’ve been crying a lot lately.  I’ve been crying in my office. I’ve cried in a meeting with co-workers. I’ve cried walking down the hallway of the hospital where I work, talking to my manager.

People don’t seem to be worried about me, which is kind of amazing.

I’ve had moments where I’ve wondered if I — and they — should be worried about me.

Am I breaking down?  Is doing work that is so important to me, in a place that triggers some painful childhood memories, too much for me right now?

Or am I just having some feelings that have been there for a long, long time, because I’m ready for them?  Is it possible that for the first time in my life, I feel safe enough to have them?

Are my tears a sign of healing or a warning sign?

Today, I honestly don’t know.

Maybe it’s not an either/or question.  Maybe my tears are a sign of healing AND a warning sign.

So where does that leave me, today, at the beginning of a three-day vacation, after a week at work where I felt so friggin’ overwhelmed, that at times I  was like one of those archetypal Zombies that are appearing EVERYWHERE in the stories people are telling these days? (I’m throwing in a “Walking Dead” reference here, and not JUST to increase readership.)

Working at a hospital, being in a position to create real change — so that providers can be more present in the moment, with people  who are in emotional pain — is an incredible opportunity for me.  It’s a reparative experience, for what I did not get as a child in the hospital.  

It also makes me sad — in a new way, on a deeper level —  for what I didn’t get.

Being back in the hospital, in this new way, as an adult, triggers old memories and fears. These fears really don’t apply now. (I’m bolding that, in hopes it will help me to remember.)

Here’s another mantra, which I offered to somebody in a therapy session, many months ago:

Consider that you might be safer than you feel.

That is something I am trying to tell myself,  every day that I am working in this hospital.  But it’s hard to remember that. Especially when I am overwhelmed by feelings. And by too much work.

So I have felt particularly unsafe — scared —  at the hospital, these days. When I feel unsafe, I tend to isolate. I tend to think that people don’t care.

But now that I’m crying more publicly, my co-workers — whom I might fear, out of old habits — are showing me all sorts of things about themselves, which are helping me feel safer.

While I feel some shame about showing my tears and my fears to my co-workers, this is how they are responding to me, in words and action:

  • When you show us your feelings, we appreciate it.
  • We think you are strong.
  • We want to  help you figure out how to get what you need, so you can stay and work with us.

I want to figure out how to to get what I need, too, so I can stay and work with them.

We’ll see if we can figure it out, together.

Feeling safe enough.  Having deeper feelings. Doing — in the world — what feels valuable and true.

It’s all a work in progress, isn’t it?

Thanks for reading, on this amazing day (with lots of feelings).

Categories: personal growth | Tags: , , , , , , , , , | 8 Comments

Day 91: The difference between arrogance and confidence

I am writing about this topic  because I dealt with somebody today, in a position of some power,  whom I  experienced as arrogant.  “Arrogant” was the adjective that occurred to me several times during the interactions I had with this person and the interactions I witnessed with other people.

And that had an effect on me, especially because I spent a lot of time in the hospital, as a child, dealing with all sorts of medical people, who were in positions of power.  I found it particularly challenging — and painful, at times — to deal with arrogance in that setting.

I will look up a definition of “arrogance” shortly, but first I want to say that my definition of arrogance definitely includes the following: a disinterest in listening to and learning from others.

I hesitated to write about this topic today, because I am, obviously, being judgmental here. To a certain extent, I am mind reading — assuming I know what is going on in the mind of somebody else.  How do I know whether somebody is disinterested in learning and listening, really?  I’m just guessing.

Here is an on-line definition of arrogance:

n.  offensive display of superiority or self-importance; overbearing pride; haughtiness.

Looking at that definition brings to mind something else.  I also hesitated to write about this topic today because I see so many people who are afraid of being arrogant — to the extent that they are afraid of being confident in themselves.

That concerns me. I often want to encourage people’s confidence and their belief in themselves. And it’s tricky, because how do we know if our pride and our sense of our own importance is “offensive” or “overbearing”?  Fear of being too confident often results in “playing small,” as described in the Marianne Williamson poem I included in a post, here.
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I don’t know if this will help, but here’s another of my own personal definitions of arrogance:

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If you are afraid of being arrogant, chances are you are not.

That’s a nice simple rule, isn’t it?

_____________________________

I also wanted to take this space to respond back to another blogger’s kind wish to connect with me and other bloggers by asking a series of questions.  And, as I’ve written before in this blog, I love questions! (See here for more about that, plus a tres cool special about Jackie Chan.)

Caliwow asked me to answer the questions she posed in this blog post.  I will now do my best to answer them authentically (while also sleazing out of answering some of them):

Q.  How old are you? *muwahahaha!*      

A. I  made it to 60!  

Q.  What is your favorite country and why?              

A.   I will pass on that question, because I don’t want to hurt any country’s feelings.

Q. If you could be any other race, which would it be and why?          

A.  See above for not wanting to hurt any feelings.

Q.  How do you make decisions?    

A.  Very reluctantly.  According to my Myers-Briggs test results, I have a high level of Perceiving (vs. Judging), which means I love collecting more and more data before actually making a decision.

Q. Share one moment in your life where you legitimately thought you were going to crash and burn; end up either losing all your friends, becoming homeless, have to move back in with your parents, etc…

A.  I’ve dealt with a couple of severe — although thankfully short-lived —  depressions in my life.  I definitely had some fear of “crashing and burning” during those.

Q. What are some of your top things to blog about?

A.  Questions and answers!!!

Q.  Who you pick from history to sit down and explain McDonald’s to?

A.  I have trouble explaining most things, much less McDonald’s.

Q.  Would you rather wake up naked and sore with no memory of the night before next to the Burger King telling you “you had it your way” or next to Ronald McDonald who told you how much you were “loving it”?

A. See above regarding my difficulty making decisions.

Q. Which TV show would you like to be a guest on?

A.  The Daily Show.

Q.  If you HAD to be a dangerous criminal from history in your next life, whom would you choose?

A.  I’m not coming back, if that’s my only choice.

Q. What type of utensil do you prefer while writing? Pen, pencil, marker, crayon, calligraphy brush, etc…

A.  Oh, man. Those were the good old days.  These days, I’m writing with a keyboard.  When I do use a utensil, it’s a pen.

Thanks, Calliewow, for including me in this question tag,  and for your inquisitive mind.

And thank YOU, for reading.

Categories: personal growth | Tags: , , , , , , , , | 4 Comments

Day 79: Tears and Take Aways

The title of this post came to me, earlier, when I was thinking of possible topics.

It relates to my experience as a therapist, as well as to my personal experience today.

Yesterday, somebody in a group therapy session thanked me for “inviting crying.” She noticed that I have, in my office, big boxes of fluffy tissues within  sight and easy reach. (I sometime invite tears more blatantly, saying, “all your feelings are welcomed here.”)

Something else I invite? Take aways,  at the end of an individual or group session.  I often ask people to name something they want to remember — something they want to “stick” with them after they leave.

Today, I went to see a psychologist, who is a sleep specialist.  (I mentioned this in this previous post, about sleep.)  It was a very useful and helpful meeting.

I told her a lot, about my medical history, my sleep history, and my current sleep issues. She gave me a lot to think about.

Here is the Take Away that is sticking for me right now, out of many wonderful suggestions she made.

She suggested that I tell myself, before I fall asleep,

“You are not going to die, tonight, in your sleep.”

Her style was very matter of fact, and she spoke the language of data.  She made an unemotional, convincing case for this.

And I knew that was my important take away, because once I really took that in and believed it ….

….. that’s when I needed her box of tissues.

As always, thanks for reading today.

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Day 75: Things that make me go _____

I woke up this morning thinking of lots of subjects I could write about, today and in future posts.

I considered writing some drafts for future posts, and then thought, “Hey!  Maybe I can come up with a topic today that can cover several of these ideas!”

Hence the title of this post, “Things that make me go __.” (With thanks to a song title I’ve always liked:  “Things That Make You Go Hmmm.”)

THINGS THAT MAKE ME GO BOO HOO.

Here are some things that can make me so sad, that I may very well cry.

1. When I experience somebody disconnecting from me.

There are all sorts of reasons why people disconnect from each other — why they regulate intimacy in the moment — whether it’s guilt, shame, being overwhelmed, fear of being rejected, boredom, fear of intimacy, etc.

In the hospital, when I was a kid, I think treaters would sometimes put up barriers to connection, for lots of reasons, so I think I am pret-ty sensitized to that moment of disconnecting. At the same time, I recognize that we all regulate intimacy — we have to!  Boundaries are important.

My most recent experience of my sensitivity to this “moment of disconnecting”  was yesterday.  After a person who schedules meetings at work was harried and a little abrupt with me — because (I know!) that person is overworked and (I think!) guilty about needing to cancel lots of meetings —  I went back to my office, closed the door, and, much to my amazement, sobbed for a few minutes.

2. When somebody I like leaves.

When I was sobbing in my office yesterday, it also occurred to me that this reaction might also be related to the fact that  one of the people at the front desk where I work — who does a great job and who is welcoming, thoughtful, fun, and just generally wonderful —  was leaving yesterday.  It was her last day at work with us.  (Sigh.)

3. When animals are in danger or hurt in some way.

When I was a kid, I remember reading a children’s book where somebody steps on a kitten, and the kitten dies.  Oh. My. Gawd.  I think I cried for days.

Also, I saw the movie “Breakfast at Tiffany’s” in the theater when I was really young. (I just looked it up — I was 8 years old.) I remember a scene at the end of the movie, where Audrey Hepburn and George Peppard are reuniting for a “happy” ending, after Audrey Hepburn had done this horrifying thing of pushing her cat out of the cab into the rain. I remember that I couldn’t stop crying — even though George Peppard had found the cat, and he and Audrey were hugging, with the cat in between them — because the cat was still getting wet.

While I think that’s great that I could find that scene just now on YouTube, I have to admit that — watching it again now, for the first time since I was a kid — I started crying when Audrey Hepburn kicked the cat out of the cab. Again!  And I’m just turning off the waterworks, now.

Man!

Okay.  Time to move on to another emotion. I think I’ll write about one more, for this post today.

THINGS THAT MAKE ME GO HA HA.

Here are some things that make me happy, to the extent that I Laugh Out Loud.

(By the way, I have a pet peeve about the abbreviation LOL. I sometimes suspect that people use this inauthentically!   I think that when people write LOL, they are often  NOT Laughing Out Loud, but rather Smiling To Themselves.  I know that’s shocking, but this is what I assume.

If I ruled the blogosphere — and was therefore corrupted by that power — I might track people’s use of LOL, compare that with video taken of them by their computers’ cameras, and impose fines for misrepresentation.)

1. Certain scenes in certain movies.

The first movie I remember laughing out loud at in a theater was “It’s a Mad Mad Mad Mad World” —  a very slap-stick-y movie with a huge cast.  (I just googled that, too, and I was 10 years old when I saw it.)  I laughed and laughed at a scene where there is a car crash in a tunnel —  which we don’t see, but only hear. What cracked me up was not the crash, but what happened after a moment of stillness and silence, when a tire comes rolling out of the tunnel.

I have seen this scene subsequently, and it didn’t make me laugh again. I don’t think I even found it all that funny. But I did enjoy seeing it, remembering how much pleasure that movie moment gave me, when I was a kid.

Let’s see if I can find that scene on YouTube now. (I have to admit, dear reader, I’m still a little drained after watching that friggin’ Audrey Hepburn kick that poor cat out of the cab again.) (So I will do my best, but I’ll only look for a brief time.)

The trailers I looked at have lots and lots of action scenes, but they don’t show that moment. Here’s one trailer (I think it’s actually a non-USA trailer):

“It’s a Mad, Mad, Mad, Mad World” trailer

The only YouTube video I found that included that Rolling Tire was one of those compilations somebody makes with their own soundtrack. So forget that.

But looking at several YouTube videos told me something– I probably liked that rolling tire because it was one of the few “subtle” moments of comedy in the whole thing — it was a momentary rest from all that action!

Other movies where I’ve laughed out loud  — since that initial time in 1963 —  include “The Producers” (the original, 1968 version), “This is Spinal Tap,” “Galaxy Quest,” “Ferris Bueller’s Day Off,” and “A Fish Called Wanda.”

While there are lots of movies I think are funny (I’m thinking of the early Woody Allen movies), I don’t easily laugh out loud at them. And I’m actually having trouble thinking of another movie, since that scene in “It’s a Mad Mad Mad Mad World,” where I have truly cracked up, laughing for an extended period of time at a movie.

2. Sharing a moment of silliness with a friend, where we both think we’re not supposed to be laughing.

Oh, yes. This is probably the Mother Lode of Laughing out Loud.  My friend, Megan, at my birthday party, told a story about our attending a weekend workshop at a place where You Weren’t Supposed to Talk During Meals.  Something struck us both as funny during one of these meals, and we could NOT stop laughing.  We had to leave the dining room.  The laughing — and the trying not to laugh — was so intense, it hurt.  (Do you have memories of something like this, dear reader?)

3. Finding pleasure, delight, and surprise in something somebody tells me.

I’ve been told that I’m quite an easy laugher — outside of movies, I guess. When I’m having a personal interaction, I know I really enjoy hearing other people’s humor, creativity, and any expression of their personal joie de vivre.

I’m sometimes not actually aware that I’m laughing, and other people sometimes let me know about that. Just the other day, a patient whom I had seen for a few sessions, and then hadn’t returned for about a year,  called to make an appointment. She said, at the end of the phone conversation, “I miss you!”  I remembered being surprised by that.  When I saw her in person, she said, “You laughed when I said I missed you. Why?” She said she wasn’t offended, but curious.

Sometimes I wonder whether people might take my (often unconscious) laughter “the wrong way.” I guess I can’t control that, but maybe I can be more mindful of my own laughter, and hope that people check it out with me, as this patient did.

Okay, dear reader, I’m going to end this Saturday Post, because here are two Things that Make me Go Zzzzzz (or at least run low on energy):

  1. Writing a post with some deep emotional content, and
  2. Needing something to eat.

Thanks for reading, everybody.

Categories: personal growth | Tags: , , , , , , , , , , , , | 8 Comments

Day 66: Random Thoughts, before an 8:30 appointment

I woke up this morning feeling scared, and my natural preference for that was to isolate.

So I was choosing to write in my blog, rather than to talk to my boyfriend.

I noted that, and realized that it might be more helpful to connect with another person.

So I consciously chose to talk to him, briefly, before coming downstairs to write this blog post.

My wish this morning is to write this post before I leave for an 8:30 dentist appointment.

I know that what will help me to write this blog post quickly is to give this post a title like “Random Thoughts,” because that will quiet down my critical self, and allow me to just write, rather than judging and rewriting as I go.

I woke up pretty scared this morning, immediately aware of my hip pain, and my associated fear that I have endocarditis.

I wondered if this hip pain is “psychosomatic” — that there is actually nothing wrong with me.

I also have been worrying — now that I’ve blogged about this fear, sharing it with who knows how many people — that sharing this might have been a mistake.

Of course, it’s done, and I can’t undo that, and worrying about what is in the past does not help.

But that worrying has been very pervasive since I posted yesterday, so it might be helpful to look at that for a moment.

What seems to help me — when I’m scared — is to identify a link with my past, when I was a scared little girl in the hospital, dealing with heart problems and surgeries, alone without my parents for most of the time. (I write more about that experience, here.)

I had a pacemaker, starting at age 10, and because technology was so new, the pacemakers would break, a lot. The batteries would run down, the wires would break in various places, once the casing of the pacemaker — which wasn’t strong enough — “got permeated by my body fluids” (I swear I remember them using that exact phrase, when I was a kid).

It’s occurring to me now that my family and I, if we had been a litigious bunch, I suppose, could have sued about this stuff. Because, looking at it now, with the eyes of an adult, in a law-suit-permeated society, I guess we could have “made the case” that they were putting these pacemakers in a child before the pacemakers had been tested enough.

But this was at the dawn of pacemaker technology, and we didn’t have a choice. It was either use new pacemakers or lose me. At least, that was the story the doctors were telling, and i think that was a reasonable story at the time.

I remember my mother telling me the story of how the doctors broke the news to them that they had decided to put a pacemaker in me, at age 10. I had a heart stoppage during an observation visit at the hospital, which the doctors had never witnessed before. We think that my heart had stopped twice before, at that point, because I had fainted, once at home and once in the school yard. “Heart stopppages.” That term might not be accurate, right now, because in all three cases, my heart started up on its own again.

But the doctors still reacted very strongly when I fainted at the hospital, and they realized that my heart had stopped (and then started up again). They totally changed the game plan, and decided to put in a pacemaker the next day. My memories are that they had never even mentioned a pacemaker as a possibility before. (Or maybe they had mentioned it to my parents, who then kept that possibility from me. But I don’t think so.)

So after I fainted in the hospital (which I think was either on November 20th or 21st, 1963), the doctors decided to put in a pacemaker ASAP (which was on Friday, November 22).

That is a date which some readers will recognize immediately. November 22, 1963.

Anyway, I will say more about that in a future post.

So to return to my immediate goal this morning — I want to write a post that is helpful (for me) (and, therefore, perhaps for others) and reasonably coherent, by 7:15, which is 13 minutes from now.

So what is it that is most important for me to communicate this morning?

These random things:

When I am more scared than usual, there is usually an association with my past — when I was (apparently) a terrified little girl, alone in the hospital.

It helps me to name that. It helps remind me that I am NOT a scared little girl, alone in the hospital now.

I have skills I didn’t have then.

I have knowledge I didn’t have then.

I have connections I didn’t have then.

While I feel like I’m alone — while I feel like I have to withdraw from others in order to protect myself — I am not alone.

I think that’s what I needed to write this morning. I feel better now and ready to go out into the world, meet my obligations of the day, and bear my fears about my current medical condition.

However, I have seven more minutes!

So I’ll use the time to write down some other, less crucial random thoughts, dear reader.

Here they are:

When I use the term “dear reader” in my blog (even though both my son and my boyfriend don’t like that term), it’s my way of consciously trying to connect.

I’m good at connecting with people. I had to be, to survive as a little girl alone in the hospital.

I love that I’m good at connecting with people. It makes me good at my job, as a psychotherapist. It adds color and value to my life, every day, at work and everywhere else I go.

When I’m more scared, depressed, in worse mood, “more symptomatic” (whatever language I use for feeling worse), I tend to isolate.

And part of isolating is mind reading — projecting onto others my fears and judgments about my self.

One thing I’ve been doing since I blogged yesterday — which was a tough and important post for me to write — has been feeling some shame about sharing things that feel that personal — and medical — with people I know but also many, many people (even though I don’t know how many) that I don’t know.

It has been occurring to me a lot lately that blogging — sharing in the blogosphere — is very much like doing a therapy group. It evokes a lot of the same benefits — connecting and letting go of old habits and fears — as well as the same fears — have I said too much? will people judge me?

Sometimes I feel like a facilitator (group leader) when I’m doing this “Blogging Group”, and sometimes I’m more of a participant.

When I write about illness and fear, I feel like more of a participant.

Being a participant in a group is riskier than being a facilitator/group leader.

I have three more minutes!

It’s helping me to write down these thoughts.

There are lots of other things that I might write here, because I have lots of thoughts and have had a rich and complex past.

But what feels most important for me to say?

I guess I want to let you know that I have been projecting some old fears and hospital experiences on to you — my readers.

I’ve felt scared because I told you, yesterday, about my fears of having endocarditis. And that got me into a whole series of scary thoughts, which remind me of when I was a kid in the hospital, with a failing pacemaker.

Here are some thoughts that came up when I was a kid thinking something was wrong with me medically (that my pacemaker was failing), and which come up now (that I am afraid I have endocarditis):

Should I tell other people about this?

If I do tell other people about this — that I’m afraid that there is something wrong with my health — something that might be life-threatening — there are some risks.

I might be wrong. If I’m wrong and I got other people scared, I might lose them. They might get annoyed that I caused them unnecessary worry. I might lose credibility with them. “She’s the girl who cried ‘Wolf!’ We stopped listening to her!” And I did feel, when I was a kid, that I had to be right, 100% of the time, when I let people know I feared that my pacemaker was failing. If I was wrong one time, I believed THAT is what would stick — and they would never believe me again. But if I didn’t say something, I might die, because of a faulty pacemaker, which I was aware of, because my heart was skipping, but which was intermittently malfunctioning, so that the doctors could not replicate the problem at first. So i DID need to say something, But I might be wrong.

So being wrong was/is very scary.

I might be right. If I was right, I would need to have surgery (or — if I’m right about the endocarditis, I’ll need to leave work for a while and be on IV antibiotics for 6 weeks, and this will have been the fourth time, and last time, they said they might need to take some drastic measures, like extracting all my teeth) (NO!!!).

So being right was/is very scary.

Okay, I ran three minutes over. I think I can still get to my appointment on time.

I am not reading this over, at all, dear reader, before I post. I might, later, read this over and make some very basic corrections, if my fear is that I’ve lost you too badly. I want you to understand me!

Okay, now I’m done.

One more thing, of course: thanks for reading.

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Day 64: You never know where your day is going to end up

This is going to be a short post because I had a very long day.

And all I want to say today is how my day started and how it ended.

My day started with my sobbing, before I left for work, because I had allowed myself to get in touch with some fears about my health, which I had never really allowed myself to feel before. These fears were a collection of old fears from my childhood and some current fears that I do need to live with, but often deny and suppress. And this morning, because I was talking about these fears to somebody I trust, I allowed myself to feel the fears in a new, very primal way.

And I sobbed.

Then I went to work and lots of things happened.

Then, tonight, I went to a meeting to start planning a high school reunion.  I traveled about 20 miles and about 45 years back in time, to meet with some people with whom I spent several formative years, but whom I have not seen for quite a while.  When I was traveling those 20 miles to the meeting — and because the memories of the past were right there — I had some fears about that meeting. I thought that perhaps these people at the meeting might have judged me in high school and might also judge me tonight.

(I mean, this may be the Year of Living Non-Judgmentally, but we’re talking High School, for cripe’s sake!)

But when I got to the meeting, I realized that everybody there wanted to be there because they felt an urge to reconnect.   And people were as kind as could be to me.

And I was happy to be there with them and to start planning our high school reunion, together.

So, dear reader, that was how my day started and how my day ended.

And I’m happy to be here, now, too.  Thanks for reading.

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Day 62: Self Disclosure

Self disclosure — what I reveal about myself — is something I think about a lot, in my work as a group and individual psychotherapist and, now, here in the blogosphere.

Some people who comment to me about this blog have said, “You are so brave, revealing so much of yourself!” I don’t feel brave about what I am writing here. As I’ve said in several other posts, I choose what to write here based on What Will Help Me To Write, in the moment. One might call that selfishness, not bravery.

At the same time,  I recognize that it does take courage for people to expose themselves — because exposure increases vulnerability.

And I do feel fear, at times, after I launch a post into the Blogosphere with the “Publish” button. Sometimes, before clicking that Blue Square of Publishing, I hesitate. And after the launch, several fearful questions can arise — ones that I witness people experiencing in group therapy — such as, Did I reveal too much? Have I put myself in some danger now? Will I lose some people? Will I get hurt? Will I hurt others?

In my work, I am not a “blank slate” kind of therapist. My style is to self disclose, in a thoughtful way. I do let people know what I’m thinking, authentically, usually focusing on their issues — on their journey. When I self-disclose as a therapist, I often ask myself this question first, “Who is this for?” and I let the answer, “For the other person” help guide my choices in self-disclosure.

But the truth is that the answer to that question, “Who is this for?” isn’t a simple one, because any self-disclosure I do is also for … me.

I also guide and limit my self-disclosures as a therapist in another way. I don’t tell people personal details about myself and my life outside of my work. I reveal “existential” information about myself — that is, how I experience and deal with primal, human issues, like dealing with loss, self-doubt, fear, the need to connect with others, and so on.

And I have heard from many clients, patients, and group members — people I’ve worked with in different ways — that the way I self-disclose has been very helpful for them.

But my self-disclosure as a therapist is something I have some fears about, because there are no clear rules. Or — especially in the Earlier Days of Psychotherapy — the Rules of Self-Disclosure can be very rigid, like “Thou Shalt Reveal NOTHING!” And psychotherapy is not a science, folks, as much as some practitioners may want to think that it is, or believe that it’s getting closer to a science. So, to a certain extent, those of us in the Therapy Biz are all making this up as we go along. (Mind-Reading Moment: I’m imagining other therapists reading this paragraph and getting angry.) (Catastrophizing Moment: I’m imagining losing credibility in the Therapy Biz because of what I’m writing here.)

Phew! As usual, catching myself Mind Reading, Catastrophizing, or engaging in any other cognitive distortion — like I just did in that last paragraph —  helps me to let go of fear. And I feel better!

So where was I?

Here’s some self disclosure.  When I ask myself  “So where was I?” I am really asking, what did I want to communicate here?  That is, What was my wish, my intent for this communication?  Because that guides what I choose to write, even if I “veer off” along the way with extraneous thoughts.

Here’s some more self disclosure. I am a lot more forgiving of other people’s imperfections or humanity than I am of my own.  People I witness often apologize to me about their asides, their digressions — how they get “waylaid” when they are telling a story, by “extraneous” thoughts.  When they apologize, I often say, completely authentically — “That’s the way people tell stories.”

But yet, I have trouble forgiving that humanity — that we are not perfect, linear story tellers — in myself.

Which reminds me of  one of the Antidotes (to Cognitive Distortions) I’ve been collecting:

  • The “Double-Standard” Method. Instead of judging yourself harshly, talk to yourself as compassionately as you might to a friend with a similar problem. Also, ask yourself, “How would I react if somebody else did this?”

So, to go back to that “Where was I?” question — What was it I wanted to reveal here today?  What did I think would help me to write?  Which also includes this:  What did I feel a yearning to communicate to you, my reader, today?

Here are  some things I wanted to self-disclose today:

I wanted to let you know about other important members of My Team (people who help me survive in this world by giving me personal or practical support). The team members I wanted to tell you about today include Bob and Laurie, who work at the Pacemaker Clinic, where I go for periodic check-ups.

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I wanted to let you know that I’ve felt connected to Bob for several years, and that I appreciate, so much, how he treats me with respect.

I  also wanted to let you know that, until Thursday (when I took this picture),  I feared working with Laurie, because I did not feel connected with her. Because her style is so different from mine, I projected judgment onto her, and mind-read that she was thinking negative things about me, like “This woman is  a pain-in-the-neck patient.”  “She doesn’t know what she’s talking about.”

I wanted to let you know something else about Laurie and my encounter with her on Thursday: I expected to work with another person at the clinic that day, named Melanie, whom I’ve known, trusted, and pretty-much-loved for over 20 years, and when Laurie came to get me for my test,  I knew that I was showing my disappointment.  As Laurie was putting the electrodes on me for my pacemaker test (which, honestly, has scared me for each of the hundreds of times I’ve had those tests before), I felt so lousy — with disappointment, anger, fear, and disconnection —  that I decided to do something new and be authentic with her. So I said, ” Laurie.  I don’t feel a connection to you. I wanted to let you know that.  I also wanted to say something, that feels important, to myself and to you, right now.  It used to be important to me, when I was a kid, to feel connected to everybody who treated me medically.  But I’m not a kid any more. I don’t need that connection with everybody who treats me.”

I don’t know if Laurie understood everything I was saying to her, but she was authentic with me, too. She told me, in her own words, “I know you don’t feel connected to me. I know you feel much more connected to the other people here.  That’s why I offered you the chance to wait for Bob to be available. Not everybody feels connected to everybody else.  Some people feel connected to me, others don’t.”

And that exchange with Laurie was one of the best things that happened to me that day.

It was also great to see Bob after my test (which showed that everything was working great, by the way) and to blab with him a mile-a-minute about birthdays, vacations, What’s Going On With My Pacemaker, etc. etc.

And when I asked if I could take a picture of both Laurie and Bob and put them in my blog, they both seemed pleased to oblige.

I also wanted to tell you that after I took this picture of Laurie and Bob, I met with Dr. Mark Estes, who is one of  two Crack Cardiologists on my team.

The Lead Cardiologist on My Team is Dr. Deeb Salem, whom I’ve been working with for over 30 years and who I pretty-much-adore, because he, from the moment I met him — when I was interviewing cardiologists after I decided to leave Children’s Hospital, where I had been treated from birth —  showed me how smart he was and also treated me with respect. He let me know that he would treat me as a partner and an equal if we worked together.

And — like they did in my first encounter with my mechanic, Mark —  all my Trust Indicators came up green when I first met Dr Salem.  And Dr. Salem has been incredible — the most appreciated Medical Team Member I could ever imagine — ever since.

But I wanted to tell you, today, about Dr. Estes.  Dr. Estes — because his style is different from mine — is also somebody with whom I’ve Mind Read in the past. That is, I’ve projected judgment onto him, specifically fearing that he might experience me as a pain-in-the-neck patient.  And this is totally unfair to Dr. Estes, which I’ve known before, but which hit me with a burst of new understanding on Thursday, when he sat down and talked to me for about fifteen minutes after my pacemaker test with Laurie.

Dr. Estes is a very smart, very well-respected pacemaker specialist. He is also kind, thoughtful, and — above all — a very modest guy. As he self-disclosed to me on Thursday, “It’s my Quaker background.”  He did not want me to take a picture of him and feature him in a blog post because, as he said in his own words,  I don’t want to do anything that seems like self-promotion.

Dr. Estes also let me know, in new ways on Thursday — which I was able to take in because of the work I’ve been doing on self-acceptance — that he really appreciates me as a patient. He acknowledged that other doctors might find me a handful, because — as he said in his own words — I’m intelligent, I ask lots of questions, and I am complicated medically — but he said this to me, very clearly, on Thursday: I really enjoy working with you, Ann, exactly how you are.

And those encounters I had at The Pacemaker Clinic on Thursday felt so important to me, so liberating, so moving, that I walked away from that appointment, with tears in my eyes.

And I have tears in my eyes, now, dear reader.

Okay.  My work here is done today.

Thank you so much for witnessing, as I self-disclose along this always surprising, team-supported journey.

P.S.  I don’t think I will hesitate much before pressing “Publish” today.

P.P.S. Which is amazing!

Categories: personal growth | Tags: , , , , , , , , , , , , | 19 Comments

Day 51: Honesty, Judgment, plus Sleep (again!)

Honesty is really important to me.

And I know I’m not alone in feeling this way.

But, I wonder if my focus on honesty is unrealistic.

I wonder if my childhood experiences have made ma kind of an Honesty Fanatic. I wonder if my childhood experiences have made me Too Judgmental about other people’s honesty — not allowing for human imperfection.

Not knowing how I compare to other people — who haven’t had my childhood experiences — regarding honesty and trust, reminds me of something I wrote in Day 21 of this blog.  That post — in which I wrote about how getting ill  (even with a cold) could affect me — included this section (which I’ve italicized here):

Even when I’m a little bit ill, being sick affects how I feel about myself.

I’m not sure whether that’s common for people. I haven’t really checked that out in any real way with other people. In other words, I haven’t used the helpful skill — an “antidote” to the Cognitive Distortion of Mind-Reading — of Reality Testing.  To put it more simply, I haven’t asked other people, “When you are even slightly ill, does it affect your sense of self worth?”  I mean, I know that serious and chronic illness can definitely affect people’s sense of self-worth, but A COLD?

The reason I haven’t really checked that out  before is this:  I assume that I’m different from other people in how illness affects me, because I dealt with so much illness when I was a child.  So I just assume that I’m “weird” when it comes to that.

So tonight I’m thinking that maybe I’m “weird” —  also —  about other people’s honesty.

Because this is how I am in relationships: if I think somebody been dishonest or deliberately misleading, it has a major effect on how I relate to them.

Now, I have seen other people be very All or Nothing about Trust issues.  I’ve heard people say about themselves, “Once somebody breaks my trust, that’s it.  I can’t forgive them.”  I’ve also witnessed other people be much more “forgiving” about trust issues — including resuming a relationship when their partner has cheated on them.

I don’t know how to gauge What’s Normal or What’s Appropriate when it comes to Trust and Honesty.

I think I’m pretty rigid about the issue of honesty.

Actually, the word “rigid” is  self-judgmental.  It’s a form of labeling, one of the 13 cognitive distortions.

So I won’t use the word “rigid”, but I will say this. If somebody is dishonest or misleads me, I get really upset when I find out about that. I withdraw.  It takes me a while to trust them again.

So, how “normal” is that?

And if that’s not a useful question, then how about this question: How can I negotiate the issue of trust in a way that’s helpful for me and the people I love?

By the way, I’m writing this post during a bout of insomnia, which I alluded to in yesterday’s post, and which I am going to do something about.  (I’m not just saying that! I got the names of two sleep specialists, and I plan to start the process of contacting them tomorrow.)

But I’m not sure what to do tonight.  I woke up at 1:30 AM and had trouble getting back to sleep. I remembered reading that some sleep specialists suggest this:  if you have trouble sleeping, don’t lie awake in bed too long —  get up and do something else.

So after I had stayed awake until 2:30, I got up, left the bedroom, and started this post.

But now it’s 3:03.  And I’m not sure whether to continue with this post or to try to go back to sleep.

Because there’s a direction I could take in this post, now.  I could share something that happened to me when I was a kid, that has made Honesty so important to me.

So that’s one decision point, right now:

To share or not to share that memory?  That is the question.

Let’s say I decide to do share that memory in this post, then I have another decision point:

To write that now or later, during this 24-hour span of Day 51?  That is the second question.

Well,  I’m thinking about what would most likely help me sleep right now. (And as I’ve said in previous posts, one of my guildes for writing this blog is to ask myself the question: what would help me most right now?)

So what’s the best strategy for getting back to sleep tonight?. I’ll explore that by answering those two questions I posed above:

Question #1:  Should I share that childhood memory?

Answer: Perhaps.  And maybe soon. I HAVE written down that memory elsewhere, so I could copy a version and paste it, pretty quickly.  But that would still take time and energy, and doing that right now probably wouldn’t help contribute to getting back to sleep.

Question #2:  Should I write that now or later, in this 24-hour period?

Answer: It turned out that was too restrictive a question.  My answer is this: I won’t write about that on Day 51.

At this point in the post, it would be helpful — for me —  to tell myself this:

I have all the time that I need.

This is, I have time to write about this childhood memory, and to write more about the issue of honesty and trust.

That is, I’ll write more in future posts, and finish this post now.

Farewell, for now, and thanks for reading.

Categories: personal growth | Tags: , , , , , , , | 6 Comments

Day 43: Home-based realizations (Starring Growth! Safety! and the Entire Medical Profession)

So, I’m home. And while I love traveling, very much, I am definitely somewhat “on guard” when I’m away from home.  Especially when I’m traveling on my own for most of the trip.

So now that I’m back in my home base, and relaxing a bit, I’m realizing some things, which I’m going to jot down here, before I re-engage — for the first time in over a week — with my typical morning routine (including taking my son to school and going back for my first day at work).

These realizations  feel new to me. I think I’m having them, this morning, partly because of the personal growth I’ve been experiencing — already! — during This Year of Living Non-Judgmentally.

However, they probably aren’t completely new realizations. They are probably lessons that I’m re-realizing, again, as I move further up the ascending coil of my life’s path.  (Carl Jung spoke about our life’s path being in the shape of an ascending coil, which I wrote about here.)

However, these realizations feel new, probably because I’m experiencing them in a deeper, more profound way. And, even more importantly, I’m making these realizations more real,  right now at this point in my life, because I’m bringing them out from a strictly internal sphere and sharing these with the external world.

Or to re-state that last sentence more plainly — I’m not keeping these thoughts to myself anymore. I’m sharing them with other people in my life and with the whole friggin’ Blogosphere, right now!

So where was I before those digressions?  Oh, yes.

Here’s the main point I want to write today, on this Day 43 of the Year of Living Blog-mentally:

I have trouble believing that other people truly love me and will be there for me, no matter what.  

There is the punch-line — the important realization — right there,  in an italicized nut-shell.

So now I’m going to write a little bit about where I think this “trouble” comes from, for me.

(Although I suspect I’m not alone in this issue. Feel free to comment, if you like, if you can relate to this issue, dear reader.)

I think this issue is related to my childhood, when I was hospitalized very frequently for heart issues.  During those “primitive” times of healthcare — the early 1960s — my parents were not allowed to be with me in the hospital, outside of regular visiting hours.

(Here’s an indication of how far health care has come, in this area, since I was kid. When I tell stories about my experiences in the hospital, people CANNOT BELIEVE  that parents were not allowed to stay overnight with kids in the hospital in the 60s.)

Anyway,  between the ages of 9 and 13, I was in the hospital a lot, dealing with lots of operations and scary things (and people), on my own. So even though I’m sure my parents loved me, they couldn’t be with me during some times when it really mattered.  And I guess, maybe my young self believed — on some level — that if my parents really loved me, they would have fought tooth-and-nail, like tigers, to stay with me, no matter what.  

But, again, it was a different time.  And I think all of us — my parents and me — didn’t want to piss off the People in Control — the doctors at the hospital.  I know that I had this childish  fear:  if I DID  alienate the doctors and nurses, by not being a good (maybe even perfect!)  patient, these all-powerful people might let me die.

And I think that my parents, even though they had the wisdom of adulthood,  really wanted to please The Powers That Were, in the Hospital.  I’m assuming my parents did not want to alienate the doctors and nurses who were taking care of me,  by being Uncooperative, Troublesome Parents. (For example,  fighting tooth and nail to stay with me, like tigers).     I guess both my parents and I wanted to stack the deck in our favor with the doctors. Maybe everyone in my family believed, back then,  that if we were really good and didn’t alienate the hospital staff, we would have had a better chance to survive these experiences,  in the best shape possible.

I’m realizing now that these beliefs — fears, really — were probably untrue. (Now that I think of it, my parents and I were mind reading, fortune telling,  catastrophizing, and maybe  doing additional cognitive distortions.) (The 13 cognitive distortions are listed here.)

I’m realizing that those fears were untrue, because doctors are trained — in medical school —  to keep people alive, whether or not they like them. Even if we had been Bad Patients (or Bad Family Members of Patients), I think I still would be alive today.

But I wonder if my parents and I were (or are)  alone in responding to the medical community that way.  When people seem to have life-and-death power over you, maybe a lot of people deal with that by being compliant, by not rocking the boat, by being as perfect as they possibly can be.

Hmmmmm.  That last paragraph seems like a topic I’ll write about again.  (And maybe THAT was part of what I was trying to write about in my post about anti-Semitism and other “isms” two days ago.  (That difficult and — I believe — somewhat confusing post is here.)

A couple of more things I wanted to say about this.  Maybe my parents DID fight tooth and nail to stay with me, and they didn’t succeed.  (You think it’s tough fighting city hall?  Try fighting rules and regulations at a hospital.)

If you, dear, reader,  feel an urge to comment about what you read here in this post, I welcome your comment, as always. But, no  pressure to comment.

I don’t need you to be a perfect reader, or compliant with my requests. Not at all.

And, I have to say, it’s good to be home.

Categories: personal growth | Tags: , , , , , , , , , , , | 2 Comments

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